Page 18 - AIH-1-3
P. 18

Artificial Intelligence in Health                                           Optimizing EHRs to support AI



            based  on proprietary  system architectures  requiring the   use cases. For example, Zhang et al.  found that multi-stage
                                                                                          16
            adoption of transformation strategies.  The bigger the health   data flow chains in the UK do not fulfill recommended
                                         1
            ecosystem, the greater the difficulty to change foundational   best practices for safe data access and that its existing
            architectural system design. Ingram has documented these   infrastructure produces aggregation of duplicate data
            historical developments and evolutionary discoveries in   assets. Multi-stage data flow chains limit the diversity of
            great detail.  Ingram also explains the scientific foundations   data required to add value to end users.
                     2
            of new discoveries over time.                         “There are gaping holes in data platform infrastructure
              The literature included in this review has collectively   that supports deployment of data-driven tools (such as
            exposed that most current health ecosystem governance   digitally/AI-enabled trials, or AI deployment).” 16
            infrastructures, including legislation, regulations, and   Information, Communication, and Technology (ICT)
            policies, essentially determine not only any nation’s health   and Information Systems (IS) research tend to be undertaken
            ecosystem infrastructure but also the governance of its data,   as action research (through trial and error, providing local
            information, knowledge, and wisdom assets. Such high-  solutions to problems identified). The action research approach
            level infrastructures determine their strategic directions   enables constant evaluation of implementation providing
            including the mandating of standards compliance.  Poorly   a process of checking for and affirming understanding that
                                                    3
            informed policy decisions have  resulted in  numerous   is specific, non-evaluative, manageable, and focused on the
            costly failures and continue to impede efficient progress. 4-8  target of interest (assessments feedback loops). Standards
              A lack of foundational technical knowledge in emerging   development activities consist of collaborative problem
            developments and the continuing use of legacy systems has   solving, making use of international experts, and user
            resulted in a large digital health ecosystem-wide architectural   feedback regarding issues encountered when testing new
            patchwork.  Natural language processing is compromised   standards.
                     9
            due to the prevalence of duplicate information in EMR   The  ISO  TC  215  is  responsible  for  developing
            systems;  secondary data use or advanced data analytics is   standards specifically to suit the health industry along
                  10
            compromised by incomplete data from EHRs. 11-13  We are   with a few other Standards Development Organizations
            also witnessing a continuing proliferation of applications   (SDOs), including Health Level Seven (HL7),  SNOMED
                                                                                                   17
            (Apps). Most apps are standalone and unable to share data   International ), Digital Imaging and Communications
                                                                         18
            with EHR/EMR systems making most EHRs incomplete   in Medicine (DICOM), and Clinical Data Interchange
            and unable to provide a comprehensive overview of a   Standards Consortium (CDISC). 19-22  A number of these
            person’s health status at any point in time and across   SDOs are working collaboratively through the Joint
            different tiers of the health-care system. Incomplete EHRs   Initiative Council (JIC) established in 2007.  However,
                                                                                                    23
            represent a significant patient safety issue.      it needs to be remembered that few governments have
              Software developers tend to focus on meeting     mandated compliance with any specific set of standards
            procurement requirements, with a focus on how they can   although this is changing.
            best meet market needs and be competitive. Consequently,
            we continue to have chaos, fragmentation, and data silos   2.1. Interoperability
            as very few of these decisions are being coordinated to   The interoperability issue  is primarily being addressed
            best suit the digital health ecosystem. Its impact is that   by  ICT  professionals  making  use  of  various  versions
            collectively  we  are  generating  large  amounts  of  real-  of  HL7  messaging  standards  for  data  exchange.  Their
            world data that cannot be used effectively. Yet, health data   implementation and use require extensive data mappings
            represent a valuable asset that needs to be well governed   between proprietary  data models and  these  standards.
            and managed.                                       All health-related concepts need to be represented by
              The impact of the continuing fragmentation within   data in a re-interpretable form to represent information
            any health ecosystems not only contributes to physician   in a formalized manner suitable for communication,
                  14
            burnout  but also limits AI developments aiming to   interpretation, or processing by people or by automation.
            support clinical practice. This limitation is primarily due   Data mapping frequently results in a loss of information.
            to health ecosystems’ inability to manage all relevant data   Health data can be represented by any one of many
            flows  required to compile a comprehensive and complete   terminologies. Anecdotally, we learned that many data
                15
            health record required to support any person’s continuity   mapping activities are undertaken by administrative staff
            of care. Incomplete health records, in turn, prevent the   not necessarily suitably qualified to accurately interpret the
            aggregation of quality data sets required to make “big   meaning of terms or codes to accurately retain meaning
            health data sets” available for research and multiple other   when mapping data from one data set to another. Some


            Volume 1 Issue 3 (2024)                         12                               doi: 10.36922/aih.3056
   13   14   15   16   17   18   19   20   21   22   23