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Artificial Intelligence in Health ADRD caregiver experiences on Reddit
Table 2. Top words by topic
Topic 0 Topic 1 Topic 2 Topic 3 Topic 4 Topic 5
Count 926 Count 126 Count 33 Count 31 Count 22 Count 13
Keyword Frequency Keyword Frequency Keyword Frequency Keyword Frequency Keyword Frequency Keyword Frequency
Get 0.038 Thank 0.425 Abuse 0.207 Medicaid 0.176 Hallucination 0.227 Repeat 0.289
Go 0.033 Sorry 0.190 Forgiveness 0.173 State 0.107 Cat 0.167 Story 0.286
Time 0.031 Much 0.122 Peace 0.139 Care 0.082 See 0.090 Plan 0.146
Thing 0.027 Go 0.095 Abuser 0.112 Asset 0.072 Hallucinate 0.075 Get 0.123
Know 0.025 Share 0.093 Heart 0.103 Qualify 0.069 Real 0.074 Weekend 0.119
Start 0.024 Lovely 0.090 Cut 0.095 Cost 0.063 Brain 0.071 Tell 0.118
Year 0.024 Say 0.082 Family 0.079 Pay 0.060 Look 0.055 Minute 0.115
Mom 0.023 Person 0.064 Deserve 0.079 Insurance 0.055 Even 0.052 Time 0.094
Say 0.022 Funny 0.063 Forgive 0.067 Social 0.053 Go 0.047 Question 0.085
Dad 0.021 Man 0.062 Tie 0.065 Cover 0.047 Dishwasher 0.047 Familiar 0.081
Figure 2. Proportion of negative, neutral, and positive sentiment across
topics. Source: By authors
23.1% of the posts had a negative sentiment and 23.1% had
a positive sentiment. For instance, family members with
ADRD have symptoms of repeating stories and questions
and forgetting plans for the weekend.
3.3. Intertopic distance map
Figure 3 displays the intertopic distance map showing a
visualization of the topics, with the area of the topic circles
proportional to the number of words that belong to each
Figure 1. Sentiment distribution of topics. Source: By authors topic and the distance between the topics representing the
degree of difference between each topic. From Figure 3,
in Table 1 and Figure 1, 27.3% of the posts had a negative we can see that all topics are well separated. Among the
sentiment and 54.5% had a positive sentiment. topics, smaller clusters can be observed, where topics 0, 2,
Topic 5 was identified by BERTopic and manually and 5 are clustered, while topics 1, 3, and 4 are clustered
labeled as “symptoms of ADRD in family members.” This to each other. The clustering and proximity of topics to
topic included posts in which caregivers discussed their one another indicate that the texts in these topic clusters
family members’ most frequent symptoms of ADRD. The were related to one other semantically. It also follows
top five keywords in Topic 5 were “repeat,” “story,” “plan,” that topics that are further distanced share less similarity
“get,” and “weekend.” As shown in Table 1 and Figure 1, semantically.
Volume 1 Issue 3 (2024) 131 doi: 10.36922/aih.3075

