Page 91 - JCBP-3-3
P. 91

Journal of Clinical and
            Basic Psychosomatics                                                            Impact of seizures on life




            Table 7. Impact on daily life in DRE patients
            Theme          Subtheme        Sub‑subtheme                          Quote
            Impact on daily  Loss of activities  Working (2)  P: Before the status epilepticus, I worked and had a normal life, coming and
            life in DRE                                   going everywhere... and after the status epilepticus, no longer.
                                       Sleeping (1)       I: And what makes you most uneasy about having a seizure?
                                                          P: That I can’t sleep at night.
                                       Study (4)          I: What things do you think were disrupted or... or cut short by epilepsy?
                                                          P: The study. The study. I was also studying nursing. Which I liked a lot. And I
                                                          also had to drop it. I had to drop it.
                                       Driving (1)        P: Not going out on a motorcycle, which I used to do. Not riding a motorcycle.
                                       Recreational activities (3)  P: I like riding a bike, I can’t do that either.
                                       Autonomy (4)       P: I can’t go out with friends... (my mum) She doesn’t like to go out at night, she
                                                          doesn’t like me to go out alone, I’m go shopping, “(I want) someone to go with
                                                          her.” I go for bread to the corner, (she wants) someone to go with me. And I do
                                                          not feel well.
                       Continuity of activities Working (2)  P: As I told you, I work as a computer teacher.
                                       Study (1)          I: And what things, on the contrary, do you feel that helped you in this period of
                                                          your life? (...)
                                                          P: My friends or taking different courses to distract myself.
                                                          I: What courses did you take?
                                                          P: I did cooking, makeup, fashion design, now I’m with drama classes, guitar
                                                          classes, I’ve done a lot of things.
                                       Recreational activities (2)  P: What I am sure is that the problem is not drinking alcohol. Because in the
                                                          first place I’m not a drinker, and secondly that... if I know that on a Saturday
                                                          night, I’m going to go out to my friends’ house… the medication I take it as
                                                          early as possible at night, then I drink plenty of water and have the stomach
                                                          (full), that way...
                                                          I: So that it doesn’t...
                                                          P: ... mix a lot and have no problem.
            Note: I: interviewer. P: Patient. The numbers in brackets indicate the frequency with which each subtheme appears.
            Abbreviation: DRE: Drug-resistant epilepsy.

            perception correlated negatively with quality of life in DS   intentions  to  others.  Schönenberg  et al.   studied  theory
                                                                                                48
            patients, as shown in other studies.  In our sample, the   of mind abilities in patients with DS and found that DS
                                         45
            differences in some emotional experiences, such as shame   patients had impaired mentalizing skills compared to
            and overprotection, between  DS and DRE patients may   healthy controls. Gürsoy et al.  reported similar results that
                                                                                      49
            be partly explained by the higher stigma associated with   people with DS exhibited worse results in tests of theory
            DS. The stigma surrounding DS, being associated with   of mind compared to the control group and people with
            mental health conditions, likely contributes to the greater   epilepsy. This  difficulty in  understanding  the  emotions
            experience of shame among DS patients. On the other   of others could contribute to higher level of conflict with
            hand, DRE patients,  whose  condition is  perceived as  a   others.
            neurological disorder, are generally subject to less stigma   Interpersonal conflicts in DS patients may also stem
            and report more experiences of overprotection, as they   from psychiatric comorbidities. Diagnostic criteria for
            may be viewed more sympathetically by others. In turn, all   mental disorders often reference interpersonal difficulties,
            patients with DRE perceived overprotection from others,   such  as unstable  relationships in  borderline  personality
            which also aligns with the previous studies. 19,46  Future   disorder or social avoidance in anxiety disorders.  A
                                                                                                          50
            studies could address the consequences of overprotection   systematic  review  of  32  studies  concluded  that  samples
            in these patients, as it appears to impact all patients.  of people with DS show greater comorbidity than those

              In our sample, interpersonal conflict was more frequent   with ES, with post-traumatic stress disorder, depression,
            in patients with DS, a finding previously noted by Gupta   and personality disorders being more notable.  Thus, the
                                                                                                    51
            et al.  One possible way to explain our findings may lie   higher psychopathology in DS patients may contribute to
                47
            in the ability of people with DS to attribute emotions and   increased interpersonal conflicts.


            Volume 3 Issue 3 (2025)                         85                              doi: 10.36922/jcbp.8112
   86   87   88   89   90   91   92   93   94   95   96